The 24 -year -old British young woman Annie Holland suffers from a rare healthy state that has deprived her of eating for a complete decade. Her suffering began at the age of 12, where she suffered from symptoms such as dizzy, fainting and chronic digestive disorders. After undergoing a series of medical examinations, it was diagnosed with “AAG), a rare disorder that pushes the immune system to attack healthy neurons.
For most people, sharing a meal with family and friends is an ideal way to relax, but it’s completely different for Annie, because it makes the smell of food alone. Over the past ten years, you haven’t eaten food at all.
The woman who has not been able to eat for 10 years reveals heartbreaking symptoms that have led to a terminal disease
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While her state exacerbated, Annie underwent several surgeries during which more than 3 meters were removed from her intestine, which led to intestinal insufficiency. This condition prevents the body from absorbing the nutrients and fluids necessary for life, so Annie was forced to eat venous to keep it alive. He was told that his condition was fatal.
In a statement, according to the newspaper Mirror, Annie said: “When I was a teenager, I started to suffer from dizziness, fainting attacks and problems with the digestive system.”
“Doctors could not determine the cause of my suffering for a long time, until the tests of urine and blood finally confirmed that I had autonomous neuropathy (AAG).” It is a rare disorder that makes its immune system attack healthy neurons, which makes it live with this life disease.
“It is difficult to explain to others how the feeling is when you can never eat food. For most people, food is a natural part of everyday life, but for me something what I can’t even think,” she added. And she emphasizes that her condition imposes excellent social isolation, because she cannot participate in meals with others, while her smell of cooked food is very nauseous. “It is difficult to be surrounded by something that is an essential part of everyone’s life, while for me, it represents a real threat.”
“At the age of 12, I started badly and I didn’t think about it much. At the age of 15, it was getting worse. I was going to doctors because of many problems. At the age of 16, my life started to change forever. At the age of 18, I was diagnosed. At the age of 22, I became in an advanced stadium of the disease.”
“I never imagined that it would be.
Venous nutrition
The only artery of life for Annie is complete venous food (TPN), a medical treatment in which liquids containing nutrients, fats and essential proteins are directly linked to blood circulation. A complete venous nutritional solution is given by the Heckman line, a central catheter which is placed in a large vein near the heart. Every night for 12 hours, Annie is connected to a venous solution that works all night, which provides the nutrients that her body needs. Without a complete intravenous diet, Annie’s body will die.
Annie nurse
Dependence on complete intravenous food is not a simple question as it may seem, because it requires strict engagement to precise sterilization procedures at a time when the solution is connected by venous points. Any leakage of bacteria to the Hakkman line can cause blood rot, a dangerous infection that can threaten life.
Annie explains: “I became my own nurse at home. I had to learn to prepare intravenous food in a completely sterile, because he was even able to enter a small amount of bacteria in my venous line could reach my heart directly,” I had to learn to prepare my intravenous line with my heart, because by even entering a small amount of bacteria in my vital line to reach my heart. “”
Financial cost
Although it is an essential way to save life, intravenous nutrition requires major financial charges. The cost of the treatment that Annie receives varies between 1650 and 2470 pounds per week, equivalent to around 2090 to 3130 USD, without calculating the additional requirements necessary to ensure a sterile environment.
In addition to the high costs, Annie faces enormous psychological challenges, because daily pressures are an essential part of her life while trying to coexist with her diagnosis and her adaptation difficult to her consequences.
A challenge story
Despite her struggle, Annie is determined to make a difference for others who live with an intravenous intravenous diet. The “GoFundme” campaign has been launched to increase awareness and support.
Annie said she wanted to help continue working on the unit and provide better facilities. “Currently, the unit is located in a small, crowded office in the intensive care unit with a limited space for patient care.”
The money collected will use additional nurses, the training of medical employees and the support of families of intravenous nutritional patients by buying basic equipment such as Fibroscanner, which can cost 16 thousand and 400 pounds to monitor liver health.
“It can be patients at an advanced stage, but I want a heritage to help others. I will not give up. There are a lot of things I want to do to help others, even if my time is limited,” she said.